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#2201
2 hours ago, KingBobo81 said:

I had four rounds (five days each round) of EP (etoposide and cisplatin).

This post might be lengthy. I do not apologize for this possibility.

When I got diagnosed with Stage 4 metastatic colorectal cancer, I was put on Oxaliplatin (and 5FU), which is a platinum-based drug as is Cisplatin.

My prognosis was dire, of course. My wife did a bunch of research in the month between my initial surgery and the start of simultaneous chemo and radiation. She is a naturopath. She was looking for any way to support my body thru treatment and maybe help “treat” my disease as well.

A supplement company she uses sent out a newsletter telling of a product that was shown to stop or slow growth of adenocarcinoma tumors in colorectal cancer patients. It used high levels of glutathione to affect the tumors.

This was from one study done in another country (it was South Korea or somewhere in Scandinavia or something. I don’t recall the country).

The supplement was sold out and back ordered for months.

My wife read that high levels of L-Glutamine (amino acid) are converted to glutathione in the liver. She said fine, we will go another route.

Knowing my tastebuds would be whacked by chemo but I still needed nourishment, she proposed a protein shake with yogurt and fruit every day. I knew some patients that survived on very little food, including one that would only drink chocolate malts, and when neuropathy affected his mouth, he switched to fudge brownies. He couldn’t tolerate any other foods.

My wife said “you are going to drink this every day or I’m going to force it down you.”

She found Jay Robb protein. Egg white or whey. I think I used both. The powders taste good, not chalky. They used to have an orange dreamsicle flavor and that one tasted best while having chemo tastebuds.

Jay Robb protein has 4300mg of L-Glutamine. That was the key to buying it. We were hoping and praying that this one study on this supplement we had never heard of could be replicated another way, if it was true at all.

At Stage 4, we were open to anything.

I did well with treatment. Very few side effects. Neuropathy only while doing chemo and a few days afterwards. All evidence of disease gone after three months.

I eventually had two recurrences. Different chemo the second time. No neuropathy again.

The second time I used a different oncologist. I showed her the supplement company’s study with the glutathione supplement. She downplayed it big time. “It’s just one study. This has to be reproduced by multiple other sources that show similar results. We can put much stock into until we see other people be able to prove the claims.”

Fast forward a couple of years. I’m cancer-free for awhile at this point. I’m in the cancer clinic for a port flush and to get blood counts checked. My oncologist sees me and says “Hey! Go to an exam room when you are done with the port flush! I need to talk to you!”

She brings my thick file into the exam room and digs out the supplement company newsletter about the supplement with the glutathione.

She says “I just read the updates from the annual ASCO conference (American Society of Clinical Oncologists). They found a correlation between L-Glutamine and reducing or eliminating neuropathy. You were using that protein powder to try to stop tumor growth. What you did was become my only patient on this treatment that didn’t have long-term neuropathy. I never could understand how you didn’t have it. Now I understand.”

End of long story.

I’m telling you what worked for me when I was a much younger man. Would it work for me now? No idea.

Would having a Jay Robb protein shake with yogurt and a little water or fruit juice and fruit after already having neuropathy help reduce the effects, or do you have to ingest it while going thru treatment for it to work?

I don’t know. Maybe that answer is out.

Will this approach work for someone else? No idea. I know I would not change any part of what I did to stay alive, although I wish I could have avoided all or some of it.

This is part of my story. I don’t know if it can apply to you at this point because I didn’t have your treatment and didn’t use L-Glutamine after already having neuropathy. Maybe there is an answer on the web or thru your oncologist.

Myself, I would try it and hope I get some benefit besides a meal replacement.

Hope any of that helps someone.

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